Members of the Network have created a variety of videos for advocacy and educational purposes.

Adult Patient Stories

Board Chair Ian Stedman tells his story about living with Muckle-Wells Syndrome:

Autoinflammatory Awareness Month

Autoinflammatory Awareness Month happens in August. The following are some videos from past awareness months:

Rare Disease Day

Every February 28/29 marks Rare Disease Day, where various rare disease groups advocate for more research and better governmental policies and care access for patients with rare diseases – a category that describes all autoinflammatory diseases.